Comments for Lyme Warriors http://www.lymewarriors.com Lyme Disease Warriors Sun, 05 Feb 2012 18:10:50 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on Super Bowl XLVI JumboTron Used for Misdiagnosis of Lyme Disease Education by EricColburn http://www.lymewarriors.com/2012/02/05/super-bowl-xlvi-jumbotron-used-for-misdiagnosis-of-lyme-disease-education/#comment-285 EricColburn Sun, 05 Feb 2012 18:10:50 +0000 http://www.lymewarriors.com/?p=364#comment-285 A great campaign to inform the general public about Lyme Disease and that too often, Lyme Disease is misdiagnosed. A great campaign to inform the general public about Lyme Disease and that too often, Lyme Disease is misdiagnosed.

]]> Comment on Mental Health Implications of Lyme Disease: Bryant University Conference by Lyme_Warrior http://www.lymewarriors.com/2011/09/04/mental-health-implications-of-lyme-disease-bryant-university-conference/#comment-225 Lyme_Warrior Sun, 18 Dec 2011 15:41:21 +0000 http://www.lymewarriors.com/?p=239#comment-225 Agreed. Agreed.

]]> Comment on Mental Health Implications of Lyme Disease: Bryant University Conference by Keyla http://www.lymewarriors.com/2011/09/04/mental-health-implications-of-lyme-disease-bryant-university-conference/#comment-224 Keyla Sun, 18 Dec 2011 12:38:57 +0000 http://www.lymewarriors.com/?p=239#comment-224 That iingsht would have saved us a lot of effort early on. That iingsht would have saved us a lot of effort early on.

]]> Comment on Sharing Our Lyme Disease Stories Can Make a Difference by Lyme_Warrior http://www.lymewarriors.com/2011/02/11/sharing-our-lyme-disease-stories-can-make-a-difference/#comment-194 Lyme_Warrior Mon, 21 Nov 2011 14:53:16 +0000 http://www.lymewarriors.com/?p=96#comment-194 Hi Roseanna, Good for you! You didn't take no for an answer. I applaud you for trusting your instincts. I wouldn't be too concerned about that "high" RA factor. Mine was over 500 before it started going down. Every time I get my blood-work done it goes lower and lower. My SED rate was very high as well and know it is almost in the normal range. One of the tell-tale signs that the antibiotics are doing their job is a <a href="http://en.wikipedia.org/wiki/Herxheimer_reaction" rel="nofollow">Herxheimer reaction.</a> The symptoms you describe sound like a classic Herxheimer reaction. I would strongly recommend finding a Lyme literate MD. The Canadian Lyme Disease Foundation has a good site with a lot of information for you. Here is a<a href="http://www.canlyme.com/bottom.html" rel="nofollow"> link</a> Good luck Roseanna. Please keep me posted in how you make out. Jo-Ann Hi Roseanna,

Good for you! You didn’t take no for an answer. I applaud you for trusting your instincts.

I wouldn’t be too concerned about that “high” RA factor. Mine was over 500 before it started going down. Every time I get my blood-work done it goes lower and lower. My SED rate was very high as well and know it is almost in the normal range.

One of the tell-tale signs that the antibiotics are doing their job is a Herxheimer reaction. The symptoms you describe sound like a classic Herxheimer reaction. I would strongly recommend finding a Lyme literate MD. The Canadian Lyme Disease Foundation has a good site with a lot of information for you. Here is a link

Good luck Roseanna. Please keep me posted in how you make out.

Jo-Ann

]]> Comment on Sharing Our Lyme Disease Stories Can Make a Difference by ROSEANNA REDMOND http://www.lymewarriors.com/2011/02/11/sharing-our-lyme-disease-stories-can-make-a-difference/#comment-192 ROSEANNA REDMOND Fri, 18 Nov 2011 17:24:39 +0000 http://www.lymewarriors.com/?p=96#comment-192 Hi! I am sure that I have Lyme disease. I live in Ontario and I have been trying to get treatment for 2 years. I have been to so many specialists. Three Elisas tests were negative for Lyme. My doctor found only one thing wrong from all the blood tests I've had. A high Rheumatoid Factor of 74. She says this is indicative of an auto-immune disease, not Lyme. After I broke down in her office last week, she reluctantly gave me a 6-week course of Doxy (100mgx2). After a week a lot of my early Lyme symptoms which I suffered immediately after the original bulls-eye rash have returned. . massive headache, chills, etc. I believe this is a sign of die-off. Any thoughts? My Doctor has left town for a month so I can't ask her. Thanks, Roseanna Hi!

I am sure that I have Lyme disease. I live in Ontario and I have been trying to get treatment for 2 years. I have been to so many specialists. Three Elisas tests were negative for Lyme. My doctor found only one thing wrong from all the blood tests I’ve had. A high Rheumatoid Factor of 74. She says this is indicative of an auto-immune disease, not Lyme.

After I broke down in her office last week, she reluctantly gave me a 6-week course of Doxy (100mgx2). After a week a lot of my early Lyme symptoms which I suffered immediately after the original bulls-eye rash have returned. . massive headache, chills, etc. I believe this is a sign of die-off. Any thoughts? My Doctor has left town for a month so I can’t ask her.

Thanks,

Roseanna

]]> Comment on Lyme-Aid Family Music Festival & 5th Annual Lyme Disease Awareness Walk by Lyme_Warrior http://www.lymewarriors.com/2011/08/24/lyme-aid-family-music-festival-5th-annual-lyme-disease-awareness-walk/#comment-111 Lyme_Warrior Fri, 26 Aug 2011 19:07:59 +0000 http://www.lymewarriors.com/?p=218#comment-111 Thanks Amie, I'll make the changes to the post Thanks Amie,
I’ll make the changes to the post

]]> Comment on Lyme-Aid Family Music Festival & 5th Annual Lyme Disease Awareness Walk by Amie Levasseur http://www.lymewarriors.com/2011/08/24/lyme-aid-family-music-festival-5th-annual-lyme-disease-awareness-walk/#comment-109 Amie Levasseur Fri, 26 Aug 2011 17:04:35 +0000 http://www.lymewarriors.com/?p=218#comment-109 Hello-just wanted to let you know we have added one more performer for this event. Brazen Cane unplugged will be playing from 4-5pm! Thnaks! Amie Levasseur Hello-just wanted to let you know we have added one more performer for this event. Brazen Cane unplugged will be playing from 4-5pm! Thnaks! Amie Levasseur

]]> Comment on My Lyme Story by Lyme_Warrior http://www.lymewarriors.com/2010/08/23/my-lyme-story/#comment-23 Lyme_Warrior Thu, 28 Apr 2011 19:14:30 +0000 http://www.lymewarriors.com/?p=33#comment-23 Marcia, I wanted to add that it is possible that your SO may have co infections as well that he has not been tested for. I have Babesia as well as Lyme disease. There are many other tick borne infections that he may have that he has yet to be tested for. Good luck, Jo-Ann Marcia,

I wanted to add that it is possible that your SO may have co infections as well that he has not been tested for. I have Babesia as well as Lyme disease. There are many other tick borne infections that he may have that he has yet to be tested for.

Good luck,

Jo-Ann

]]> Comment on My Lyme Story by Lyme_Warrior http://www.lymewarriors.com/2010/08/23/my-lyme-story/#comment-22 Lyme_Warrior Thu, 28 Apr 2011 18:42:31 +0000 http://www.lymewarriors.com/?p=33#comment-22 Hi Marcia, I have been through my share of rheumatologists and I understand your concern and frustration. The most important lesson I learned from my experience is that I should have trusted my instincts. What I think that you need to do is get your Significant Other to a Lyme Literate MD. Just because someone is a infectious disease specialist does not mean that they are Lyme literate. I will be happy to email you with some ideas on how to find a LLMD. Good luck, Jo-Ann Hi Marcia,

I have been through my share of rheumatologists and I understand your concern and frustration. The most important lesson I learned from my experience is that I should have trusted my instincts. What I think that you need to do is get your Significant Other to a Lyme Literate MD. Just because someone is a infectious disease specialist does not mean that they are Lyme literate. I will be happy to email you with some ideas on how to find a LLMD.

Good luck,

Jo-Ann

]]> Comment on My Lyme Story by marcia http://www.lymewarriors.com/2010/08/23/my-lyme-story/#comment-21 marcia Thu, 28 Apr 2011 00:18:11 +0000 http://www.lymewarriors.com/?p=33#comment-21 I read your story. My Significant Other was diagnosed with treated lyme two years ago.... he progressively got worse with numbness in his feet, loss of taste, joint and muscle pain, and horrific inflammation. Was put on so much prednosone it was scary -- in fact, still on it after two years because nothing has stopped the inflammation (he just had double cataract surgery at the age of 57). He has been seeing a rheumy who does not believe in lyme; my SO has elevated blood indicator which his rheumy declared he must have RA... now he wants him to start methotrexate this friday for four weeks and then blood work before increasing it and I'm scared to death... the doc told me not to read the internet about it but I googled methotrexate+lyme and it led me to your story and others like you who are all saying it didn't help and is really dangerous.... the doc is saying if my SO doesn't go on it he'll progressively get worse and it can never get better. None of his docs will prescribe a serious dose of antibiotics -- I want him on intravenous and no one will do it for him..... We are in NJ -- any suggestions? any good docs who will put him on antibiotics? we have been to some of the best and they all say because his blood work shows up as "treated lyme" they can't help and keep pointing him to rheumotology. I read your story. My Significant Other was diagnosed with treated lyme two years ago…. he progressively got worse with numbness in his feet, loss of taste, joint and muscle pain, and horrific inflammation. Was put on so much prednosone it was scary — in fact, still on it after two years because nothing has stopped the inflammation (he just had double cataract surgery at the age of 57). He has been seeing a rheumy who does not believe in lyme; my SO has elevated blood indicator which his rheumy declared he must have RA… now he wants him to start methotrexate this friday for four weeks and then blood work before increasing it and I’m scared to death… the doc told me not to read the internet about it but I googled methotrexate+lyme and it led me to your story and others like you who are all saying it didn’t help and is really dangerous…. the doc is saying if my SO doesn’t go on it he’ll progressively get worse and it can never get better. None of his docs will prescribe a serious dose of antibiotics — I want him on intravenous and no one will do it for him….. We are in NJ — any suggestions? any good docs who will put him on antibiotics? we have been to some of the best and they all say because his blood work shows up as “treated lyme” they can’t help and keep pointing him to rheumotology.

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