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Sharing Our Lyme Disease Stories Can Make a Difference
Public Group active 8 months agoI can’t believe that it has been so long since I have been able to write. I have started many posts, only to abandon them days later when I actually read what I was trying to write. I have had a hard time digesting what I read and, apparently, writing sentences that anyone could comprehend. The words are all there but not necessarily in an order that makes sense. And then there are the times that the absolute wrong word comes out and makes no sense whatsoever. This is just one of the many irritating symptoms of this dreadful disease.
We started this site to connect with others affected by this awful disease and to help in any way that we could. I do believe that we can all make a difference. What I hadn’t expected was that I would be contacted on my previous blog, http://www.LivingRheum.com by so many people with stories similar to mine. I have had many comments from readers on that site that feel that they may have Lyme disease and their doctors will consider not Lyme disease as an option. Or their doctors just aren’t well informed about Lyme disease. I have been contacted on Facebook and Twitter from readers of LivingRheum.com with concerns because they too were bitten by a tick and have always wondered if their symptoms were related to the tick bite and not their RA diagnosis. I have been contacted by email by others who want to keep their story and concerns about a possible misdiagnosis personal. Each person that has posed a question about possible Lyme disease has symptoms that make them question the diagnosis they have been given. I have suggested that they contact a LLMD. I have shared the information I have in locating a LLMD in their area and have heard back from many that they have been diagnosed with Lyme disease and are currently undergoing treatment for Lyme.
I had hoped that in writing the series of posts, I could help one person. I am surprised at how many people have contacted me with their concerns about Lyme disease. And I am very grateful that in a small way, I have been able to help. It also makes me wonder how many other people are out there with the same issues. I know that I am one of many, many people that have spent years being treated for a condition that they never had, and unfortunately didn’t get the treatment that they needed until much later. I am hopeful that in sharing our stories, more people will see themselves in our stories and hopefully get the treatment they need much sooner than I did.
I am hopeful that this post is just the first of many future posts. I have had to focus on healing first and blogging second. As I get stronger the posts will become more frequent. I look forward to sharing more.
Jo-Ann
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Eric joined the group
Sharing Our Lyme Disease Stories Can Make a Difference 8 months ago -
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Lyme_Warrior created the group
Sharing Our Lyme Disease Stories Can Make a Difference 8 months ago
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